Testing New Data Items-We need Test Cases

  • 1.  Testing New Data Items-We need Test Cases

    Posted 08-08-2022 12:48 PM

    2022 Field Study: Call for Cases


    FROM:                  Serban Negoita (NCI SEER): Co-chair NAACCR Mid-Level Tactical Group

                                    Manxia Wu (NPCR): Co-chair NAACCR Mid-Level Tactical Group

    SUBJECT:             2022 Field Testing

    DATE:                    August 8, 2022


    The High-Level Strategic (HLSG) and Mid-Level Tactical Groups (MLTG) are conducting field testing on proposed new data items for 2024 implementation .  The field test assessments ask registrars to code the proposed new data items using original medical records. Records are not to be submitted without following the specific instructions below.


    The purpose of field testing is to assess the feasibility of collecting new information and the accuracy and consistency of coding. Feedback from the field testing will guide revisions, as needed, to codes and coding instructions and assist with determining educational needs.


    This field test will inform the MLTG in its determination of implementing the proposed new/revised data items and provide the NAACCR SSDI work group and the Standard Setters information for developing and refining new proposed SSDIs and other data items. 



    I.            Description of Cases Requested


    Cases must be de-identified before submitting.  Remove/delete all personal identifying information to protect privacy and assure confidentiality.

    Personal identifiers include:

    • Patient name
    • Physician names
    • Healthcare facility name
    • Any address and/or geographic information (street, city, state, zip code)
    • Telephone numbers
    • Date of birth
    • Social security number
    • Medical record number
    • Any other identifying information


    Remove or delete all personal identifiers from each page of the medical record.


    1. Neoplasm type: Submit at least 1 case for the data items listed below when possible. There is no minimum or maximum number of cases that can be sent.  The cases should be reportable cases that are single primary only. The most relevant reports that are needed are in parentheses.
      1. Vulva: p16 results (pathology reports, including special studies, addendum)

    1.  If sending more than one case, please submit cases with p16 results and some without

      1. Gender Identity: This is a new proposed data item that is looking for how a person identifies themselves. This could be transgender, pansexual, non-binary, along with male or female (demographic information, clinical notes)
      2. Sex for clinical use: This would be the sex the patient was born with (male, female, unknown) (demographic information, clinical notes)
      3. Surgery: New surgery codes are being developed for the primary sites below. Please send only the surgical or operative report for these cases. If submitting more than one case, please include cases that have different surgeries

    1.  Breast (lumpectomy, mastectomy)

    2.  Colon (including Appendix) (polypectomy, wide local excision, partial colectomy, hemicolectomy, total colectomy, protocolectomy, appendectomy)

    3.  Lung (excision, wedge resection, lobectomy, bilobectomy, pneumonectomy)

    4.  Pancreas (partial pancreatectomy, Whipple procedure

    5.  Thyroid (partial lobectomy, lobectomy, thyroidectomy)


    1. Difficulty Level: Most of the cases should be among the common, not rare or difficult. These cases should be typical cases registries can expect in their overall caseload.


    1. Diagnosis Date: Please send 2022 cases if possible. If enough 2022 cases cannot be found, it is acceptable to send 2020-2021 cases.



    II.            Case Preparation

    ·         Electronic submission to IMS (see instructions for how to send cases below). If you do not have cases in electronic format, then please scan the records into pdf or OCR format to send electronically.

    ·         Remove all personal identifiers from all reports.

    ·         Number the cases sequentially, beginning with Case 1 (Case 1, Case 2, Case 3, etc.) on electronic file name, not on inside of document.

    ·         Please retain for future uses, the patient ID or medical record number or any other useful information that will help you identify the original source. Please do not transmit these numbers.


    Case Submission: Please do not hold cases until the deadline.  Send cases as soon as you locate them. 


    Last Day to Submit Cases:          September 3, 2022

    When to send:                               Please send cases as they are identified. Multiple submissions are preferred rather than waiting to send them all right before the deadline

    How to send:                                 Instructions for submitting cases

    Case data will be collected by Information Management Services, Inc., who provides technical support for SEER. 


    When you are ready to transmit the case data, please email Nicki Schussler ( ).  Please include your organization's name and that the data is ready for transmission. DO NOT include the case data on this initial email.


    You will then receive an email via the IMS Encrypted data exchange server referencing the call for data.  Please respond to this email from the encrypted data exchange, attaching your data file.  If you are required to encrypt the file by your organization's policies, please provide a phone number and Nicki will contact you to get the password.


    If you have any questions regarding the call for cases, please contact Jim Hofferkamp at .




    Jim Hofferkamp

    Program Manager of Education and Training

    NAACCR, Inc