The NAACCR Data Security & Confidentiality Workgroup would like to bring your attention to the recently published "NAACCR Cybersecurity Framework and Audit Primer" which can be found here: https://www.naaccr.org/wp-content/uploads/2025/04/NAACCR-Cybersecurity-Framework-and-Audit-Primer-20250417.pdf.
This primer provides high-level information about various cybersecurity frameworks that are available to registries and some industry-standard audits that can be used to check compliance with the standards and guidelines outlined in cybersecurity frameworks.
The primer aims to support registry personnel in understanding what cybersecurity frameworks are and the role and functions of audits in an organization's cybersecurity program.
Other publications from the NAACCR Data Security & Confidentiality Workgroup area available here: https://www.naaccr.org/data-security-confidentiality-issues/.
The NAACCR Data Security & Confidentiality Workgroup updates these documents annually, and welcomes the opportunity to incorporate feedback from the NAACCR community.
With thanks,
Bozena Morawski on behalf of the DS&C Workgroup (Research and Data Use SC)
BOŻENA M. MORAWSKI, PhD, MPH (she/her/hers)
Epidemiologist & Idaho SEER Co-Principal Investigator
Cancer Data Registry of Idaho
Time-Sensitive Emergency Registry
Idaho Hospital Association
PO Box 1278
Boise, ID 83701
tel: +1 (208) 489-1373 | fax: +1 (208) 338-7800
email: bmorawski@teamiha.org