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CCDI Pediatric, Adolescent, and Young Adult Rare Cancer Study

Monday, April 27, 2026, from 12:00–1:00 p.m. ET

Register.

Come learn about the newly launched CCDI Pediatric, Adolescent, and Young Adult Rare Cancer Study, a longitudinal, observational study that will collect different types of health and genomic data from people with very rare childhood cancers. 

The information collected during the study will be added to the CCDI Data Ecosystem, where researchers can use it to better understand how or why these cancers develop and how they behave over time. This knowledge may help find more effective ways to treat people with very rare childhood cancers. 

Who may be eligible to participate? 

Kids, teens, and young adults can participate if they: 

·                     Are 39 years old or younger 

·                     Were diagnosed with a rare solid tumor less than a year ago 

·                     Are willing to provide tumor and saliva or cheek swab samples for testing 

Join our upcoming webinar to learn about the study, eligibility, and how participation may help advance rare cancer research! 

If you are an individual with a disability who needs reasonable accommodations to participate in this event, please email CCDIevents@mail.nih.gov by April 20, 2026.

Speaker:

Mary Frances Wedekind, D.O. 

Associate Research Physician 

National Cancer Institute 

Sisley Chung

Manager, Marketing Strategy & Analysis

Contractor: Publicis Sapient

National Cancer Institute

National Institutes of Health

Shady Grove/2E320

sisley.chung@nih.gov

There was an incorrect link in the original post. Please click the following link to register: https://events.cancer.gov/ccdi/webinar/registration.

Thank you,
Karen