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2019: Extent of Disease (EOD), Summary Stage, and Site-Specific Data Items (SSDI) Reliability Study

  • 1.  2019: Extent of Disease (EOD), Summary Stage, and Site-Specific Data Items (SSDI) Reliability Study

    Posted 02-07-2020 09:06

    The results from the 2019: Extent of Disease (EOD), Summary Stage, and Site-Specific Data Items (SSDI) Reliability Study have been posted on the SEER website.

    https://seer.cancer.gov/qi/tools/reliability.html

    A study of this magnitude involves a very large team of individuals. As the SEER team lead on this study, I would like to take this opportunity to publicly thank the individuals who helped make this study a successful one. Without these individuals, none of this would have been possible

    Co-lead for study: Carmela Groves (Westat)

    • One couldn't ask for a better co-lead on a project like this

    IT (IMS) Support: Bran Handley and Nicola Schussler

    • A wonderful IT support team!

    Expert panel for help in developing preferred answers and rationale:

    • On top of their many other duties, the following individuals from the SEER registries helped us develop the preferred answers and rationale: Robin Billet, Tonya Brandenburg, Mari Carlos, Jacque Clarken, Nancy Donovan, Eileen Eido, Megan Leone, Tessa Morrison, Lisa Pareti, Liz Ramierz, Winny Roshala, Nancy Santos, Terri Schade, Janine Smith, Lori Somers

    Support during post study reconciliation.

    • Carolyn Callaghan (SEER Seattle Registry)
    • Peggy Adamo (NCI SEER)
    • Lois Dickie (NCI SEER)
    • SSDI Work group, specifically
      • Donna Gress (AJCC)
      • Rich Moldwin(CAP)
      • Jim Hofferkamp (NAACCR)
      • Donna Hansen (SEER California Registry)

    Final Report development support

    • Carmela Groves (Westat)
    • Nicki Schussler (IMS)
    • Peggy Adamo (NCI SEER)
    • Serban Negoita (NCI SEER)

    Posting documents to the SEER website

    • Suzanne Adams (IMS)
    • Ginger Carter (IMS)

    And to the most important group: The ~700 registrars who participated in this study. Your participation is greatly appreciated. Based on feedback we got from you, mostly notably your comments and suggestions, we were able to find many areas that needed clarification. Many of these clarifications were added to Version 1.7 releases of the SSDI and Grade Manuals, EOD and Summary Stage.

    Thank you so much to everyone for your assistance. It has been a great privilege working with all of you. ��