New Common Rule Fact Sheet

  • 1.  New Common Rule Fact Sheet

    Posted 04-02-2021 12:01
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    The Revised Common Rule has been in place since 2018, but did you know:

    -        IRB review is not necessarily required for linkage studies that only involve release of cancer registry data.  

    -        Continuing review is not generally required for research eligible for expedited IRB review. 


    If this is news to you, you are not alone!  Recently, NAACCR created a fact sheet (attached) on the Revised Common Rule to include guidance, examples, and Q&A about downstream research involving cancer registry data.  This new fact sheet, and various other resources on the Revised Common Rule,  can be found at (under Revised Common Rule Materials).  Happy reading!


    Castine Clerkin, MS, CTR

    Program Manager, Virtual Pooled Registry

    North American Association of Central Cancer Registries, Inc.

    NAACCR Executive Office

    (217) 698-0800 x110;

    250 W. Iles Avenue, Suite A

    Springfield, IL 62704