Join us on September 2, 2020, from 2-3:30pm ET for a presentation "The Virtual Pooled Registry...and Beyond!"
Registration is free at:
The Virtual Pooled Registry Cancer Linkage System (VPR-CLS) is designed to facilitate linkages and ensuing data release between minimal risk studies and multiple U.S. cancer registries. This webinar will update attendees on the VPR-CLS pilot testing, share examples of how registries are adapting their workflows to streamline review of linkage studies, and describe cutting edge initiatives to preserve the confidentiality of patient data for linkage and data sharing.
Where are we now? Virtual Pooled Registry Cancer Linkage System pilot testing progress
Castine Clerkin, MS, CTR Making the VPR Work: How registries adapted their review/approval process to support VPR minimal risk linkage studies and use of the Templated IRB/Registry Application
Fawn Vigneau, JD, MPH
Suzanne Bentler, MS, PhD
Castine Clerkin, MS, CTR
P3RLS - Privacy Preserving Patient Record Linkage Software – evaluation
Annelie Landgren, MPH Towards a new paradigm in data sharing: A pilot study of remote access to cancer registry data
Eric Miller, MS, PhD
Training Specialist/Project Coordinator
Phone: 217-698-0800 ext. 9